"I don't want to feel like this tomorrow, I don't want to live like this today. Just stay with me here now and never surrender."
I honestly don't like posting my "therapy art," but my wonderfully supportive husband says I should.
I was diagnosed with Fibromyalgia at 19 and have been living with it for 7 years now. There's no good way to deal with being in pain every day of your life. It never really gets any less frustrating.
I know it's hard to have someone's understanding unless it's something they've had to deal with themselves. I know most people just don't know what to say. Honestly, the best thing you can do for someone you care about who's having to deal with this is simple: don't give up on them. We don't know when we're going to be "feeling better," if ever. Accept that they may not want to take that trip to the mall with you (most of the time that feels more like a punishment than a fun outing.) They're probably less-than-perfect housekeepers who don't have the energy to have people over. They can't plan for that special party because they never know when a flare-up is going to put them in bed for days. Love them anyway.
This piece is dedicated to every person dealing with Fibromyalgia. I know better than to insert a trite inspirational quote here. Just know that you're not as alone as you might feel.
Acrylic and airbrush paint, tulle, brass wire, collaged words and original photo on canvas board.
Lyrics belong to Skillet. That song had me in tears.
This is beautiful and completely shows how I'm feeling right now. My fibro has started acting up really badly over the past month and I've never been in this much pain. Thank you for sharing (inside and out).
Very cool, and the message too... even if so few people ever actually take it seriously.
I'll TMI back atchya so you don't feel so on the spot about putting your stuff online. I have lupus, severe multiple chemical sensitivities (I won't even be able to glomp the Zev plushie when he first gets here, and there's nothing much to do about it), severe photosensitivity, fibro, and type 2 diabetes. And of course the "fibro brainfog" eats my IQ all the damn time.
I'm no good with chemicals either. Or perfumes. Or cigarette smoke. Sometimes I think I'm allergic to smells. (I didn't realize until recently that they're starting to link that to the Fibro. Look, mom! I wasn't making it up!) If it helps at all, I wash all my fabrics in All Free and Clear because it's the only laundry detergent I can stand. I know you said there's nothing much I can do, but if there is just let me know. I really don't mind.
So sorry to hear about all that. It's bad enough to have one thing, let alone a cocktail. I also have asthma, Costochondritis (kinda like having arthritis in your ribs), and chronic migraines, so sometimes it feels like all my conditions get in an argument and piss each other off. Then the fibro fog takes over and I put the tv remote in the refrigerator or something.
Ah well. If life were easy, we wouldn't have any interesting art.
We once found a roll of toilet paper in the fridge. Though I didn't do that one. (I think!) Still. XD Brain fog is the worst, in so many ways. Especially when you know you're being a retard but no one will take you seriously that no, you're really not this dumb, it's medical crap. ><
We have to do any laundry (and dishes, and anything else) with baking soda or vinegar, and it takes a lot of washing to get chemicals out of things -- or a few months of just airing off, which is what I expect I'll do with the plushies. I can probably handle them a little and let them hang out on a bookshelf in the same room as me, if they're at least not scented on top of whatever. XD
But it's not the scents themselves with me, it's the actual chemical compounds. Basically my skin doesn't do its job -- when I touch a bar of soap, I essentially just took a bite out of it. Anyone's lotion or shampoo or cologne, etc etc. Just the fumes can have me tasting bitterness if someone walks by our house when our door is open. Between the chemicals passing through my skin and the tinniest bits of UV breaking my skin down even further... yeah. XD
But yes, seconding the message of this pic so, so hard. My best friend of seven years decided I wasn't convenient to keep around once we found out what was wrong with me. She'd been getting increasingly more and more ticked off that I wasn't up for going out constantly, before that. Good times.
*TMIs all over the place*
And definitely. The sickly and the crazy seem to end up creative, when we're not too sickly or too crazy. That's something, at least. XD
Though the vinegar or baking soda method for laundry detergent is useful, you may wanna try it. :3 There's also chemical-free shampoos and deoderants out there, I forget the brands but I can go see what they are. Obviously they are completely and utterly scent-free. No "chernobyl spring flowers" scented shit around here, as I like to call it.
Oh, this whole conversation is sad but it's making me laugh. I'm sure everything in this house has been referred to as "the thingy" at one point or another. Sometimes I can just look at my husband and he knows I can't think of the word, haha.
I've started replacing all my make-up and whatnot with organic stuff recently (God bless the green movement!) and I'm loving the stuff. The scents don't bother me as much with those, maybe it is the chemicals? I'm so going to use that "chernobyl spring flowers" line, btw. I always feel bad that I have to go shopping with my husband and smell his soap before he can buy it.
I don't know how many "friends" (or family, I'm sure) have lost patience with me like that, but I'm very blessed to have a BF that's more crafter than partier. Thankfully sitting around making stuff or playing a video game is probably what we'd end up doing even if I weren't feeling lousy.
Oh god, yes, the thingy. I live with two people... one's a quad who is otherwise hilariously healthy, and the other has my same laundry list of problems but worse. It's why I live with them, they basically rescued me from said ex friend before I could end up hospitalized. XD Anyway, when we both get hit hard with the brainfog... there's lots of pointing and creative gesturing sometimes, hahaha.
I'd bet money that it's the chemicals, yeah. The stuff you're mentioning, scent-wise, is all chemical crap. You could be allergic to specific types or something, even, which seems likely if some things don't bother you but the rest does. And feel free to use my line, lol. XD NOW WITH REFRESHING FALLOUT SUMMER BREEZE~
Yeah, I was always wanting to like... marathon boston legal together and stuff like that. She wanted to go play in the river. With the reflecting sunlight and the driving and the walking and the asdgagrae. !
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`anmari has been spreading her infectious positivity throughout our community for over 6 years. Throughout this time Ana has been at the core of all things devious, passionately developing an eclectic gallery, helping organise devmeets, participating in chat events and also recently completed dedicating her time as a Community Volunteer. We are absolutely delighted to bestow the Deviousness Award for May 2013 to `anmari, congratulations! Read More